Maryland Consortium for Children with Special Health Care Needs
Your Subtitle text
Systems Change Grants
The Parents Place of Maryland (PPMD), in partnership with the Office for Genetics and People with Special Health Care Needs (OGPSHCN) from the Maryland State Department of Health and Mental Hygiene has been awarded federal grants to improve access to care for children with Autism Spectrum Disorder and other Developmental Disabilities and children and youth with Epilepsy.

Although each of the grants addresses the needs of children with specific conditions, the ultimate goal of the project partners is to promote development of integrated health systems for all CYSHCN in Maryland.


Rather than having a number of isolated components that rarely communicate with each other, an integrated health system consists of components that have well established and well understood relationships among each other; these relationships and interactions affect and influence each other in a way that the entire system is affected. As a result, the system becomes much more efficient, less fragmented and redundant,  and much better equipped to serve the needs of its population.

To pursue system integration, the project partners are implementing the following strategies:
  • Strengthening, maximizing, and maintaining partnerships

  • Increasing public and provider awareness of signs, symptoms, etc.

  • Making services easier to use and better organized for families

  • Increasing family involvement and family-professional partnerships

  • Improving screening and access to medical homes

  • Improving youth health care transition


CoC's particular role in these projects is to:
  • Assist with increasing public and provider awareness of signs and symptoms of both ASD/DD and Epilepsy and Seizure Disorders

  • Help to strengthen, maximize and maintain partnerships - especially by promoting newly gained knowledge about family-professional partnerships

  • Participate in activities that will make services easier to use and better organized for families through promoting enhanced websites and other resources

  • Continue to coordinate and collaborate with fellow CoC members

State Implementation Grant for Improving Services for Maryland Children and Youth with Autism Spectrum Disorder and other Developmental Disabilities (2013-2016)

The grant aims to strengthen the leadership and infrastructure needed to identify Maryland CYSHCN-ASD/DD by 24 months and ensure access to a family-centered medical home and comprehensive, coordinated care; reduce barriers to screening, referral and diagnostic services and increase access to medical homes that coordinate care with pediatric subspecialties; and support the development of family-professional partnerships among CYSHCN-ASD/DD and the system of care.


Project partners include the Maryland Chapter of the American Academy of Pediatrics, Pathfinders for Autism, and Johns Hopkins School of Public Health.


To view the project's logic model, click here.


Project Progress (Year 1 & Year 2)



To view the project's progress poster in more detail, click here
To visit MD AAP's new section on Autism Spectrum Disorders, click here.

Access Improvement Grant for Maryland Children and Youth with Epilepsy (2013-2016)

The grant aims to improve the infrastructure needed to assure that services for children and youth with epilepsy are community-based and easy to use and that adolescents begin to take responsibility for their own health care needs; increase the number of children and youth with epilepsy in rural and medically underserved areas who have access to medical homes that coordinate care with other providers and encourage youth to take increased responsibility for their health care needs; and support the development of family/professional partnerships among children and youth with epilepsy and the system of care.


Project partners include the Maryland Chapter of the American Academy of Pediatrics, Abilities Network, and Johns Hopkins School of Public Health.

To view the project's logic model, click here.

Project Progress (Year 1 & Year 2)



To view the project's progress poster in more detail, click here.
To visit MD AAP's new section on Epilepsy, click here

 

Website Builder