Maryland Consortium for Children with Special Health Care Needs
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NEW!!!
2017 Maryland Parent Survey
If you work with Maryland children and youth with special health care needs and their families, we need your help!
The Office for Genetics and People with Special Health Care Needs (OGPSHCN) and The Parents' Place of Maryland (PPMD) are conducting a survey of Maryland parents of children and youth with special health care needs (CYSHCN). We would really appreciate your help in reaching families and asking them to take the time to complete the survey. Click here for more information.





The Maryland Community of Care Consortium for Children with Special Health Care Needs (COC) is dedicated to improving systems of care for children and their families in the state.

The COC is a working group of diverse stakeholders, including families, providers, advocates, consumers, administrators, and professionals from the public and private service systems.

Funded by a grant from the federal Maternal and Child Health Bureau, the COC offers a forum for information exchange, problem solving, consensus building, and collaborative action to address gaps and barriers in services for children with special health care needs (CSHCN) and their families.

Using the national agenda for CSHCN and core outcomes as a starting point, the COC works to create systems of care that promote optimal health, functioning, and quality of life for Maryland CSHCN and their families.
FREE Webinars For Parents:
S.M.A.R.T. IEPs
The Parents' Place of Maryland

How Will I Know My Child Is Making Progress? 
Yvette Young DeCosta and Josie Thomas, The Parents' Place of Maryland

Please note, some users may need to download a GoToMeeting Codec to be able to watch the recordings. To access the GoToMeeting Codec Download instructions, please click here.
Why the Consortium?
  • More than 244,000 children in Maryland have special health care needs.
  • Almost 1 in 4 Maryland households with children report having a child with special health care needs, greater than the national average.
  • Over 1/3 of Maryland families of CSHCN do not have insurance that is adequate to pay for the services they need.
  • Only about 55% of families of CSHCN report that they are partners in decision-making and satisfied with care; Maryland ranks 42nd among the states in successfully achieving this goal.

                            Data from 2005-06 National Survey of CSHCN

 

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