Maryland Consortium for Children with Special Health Care Needs
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Data

2010 Maryland Parent Survey

As part of the Maryland 2010 Title V Needs Assessment, a statewide survey
of parents of children and youth with special health care needs was conducted. The survey was conducted by email, in-person, and by phone with 939 families. Of those 939 families, 781 had at least one child with a special health care need. Below are data sheets showing unmet needs for CYSHCN and their families throughout the state, as well as unmet needs in each region of Maryland. 

Unmet Needs-Statewide

Unmet Needs- Capital Area Maryland

Unmet Needs- Central Maryland

Unmet Needs- Eastern Shore Maryland

Unmet Needs- Southern Maryland

Unmet Needs- Western Maryland
Looking for data about children and youth with special health care needs in Maryland?
National Survey of Children with Special Health Care Needs

The Data Resource Center for Child and Adolescent Health (DRC) provides hands-on access to national, state, and regional data findings as well as offering technical assistance on the intrepertation and use of these data by policymakers, program leaders, advocates and researchers in order to inform and advance key child and youth health goals. The DRC collects and interprets data for two national surveys, National Survey of Children with Special Health Care Needs and the National Survey of Children's Health. Both provide valuable information about children with special health care needs in Maryland and across the nation.

Here are links to the national survey websites:
National Survey of Children with Special Health Care Needs


National Survey of Children's Health


Maryland Data for Core Outcomes:
Maryland's Office for Genetics and Children with Special Health Care Needs prepared briefs about each of the MCHB Core Outcomes for Maryland CYSHCN using the latest National Survey of Children with Special Health Care Needs (2009-10) data. These briefs provide a quick overview and pertinent data for each core outcome:

 1. Family-Professional Partnerships - Maryland Data

2. Medical Home - Maryland Data

3. Adequate Insurance - Maryland Data

4. Early and Continuous Screening - Maryland Data

5. Easy to Use Community Based Services-
Maryland Data


6. Youth Transition to Adulthood - Maryland Data


The slides below were created for the Maryland Consortium members using data from the 2005-06 National Survey of CSHCN. Feel free to download and use them.
Download slides
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