Maryland Consortium for Children with Special Health Care Needs
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About the Project

The Project

The Parents' Place of Maryland, in partnership with the Office for Genetics and People with Special Health Care Needs in the Maryland Department of Health and Mental Hygiene, was awarded a State Implementation Grant for Integrated Community Systems for Children and Youth with Special Health Care Needs from the federal Maternal and Child Health Bureau in 2008. Other major collaborators in this effort include the Maryland Chapter, American Academy of Pediatrics and the Women's and Children's Health Policy Center at the Johns Hopkins Bloomberg School of Public Health.

The purpose of this grant is to implement the President's New Freedom Initiative by improving access to quality, comprehensive, coordinated, community-based systems of services for children and youth with special heath care needs (CYSHCN) and their families that are family-centered and culturally competent.

The backbone of the project is the development of the Maryland Community of Care Consortium for Children with Special Health Care Needs (CoC) that will engage diverse stakeholders in collaborative efforts to improve systems of care for Maryland CSHCN and their families. Creation of the COCC will be kicked-off with a Community of Care for CSHCN Summit.

In addition to imlementing strategies selected by the Consortium, the project will expand and enhance existing efforts within the state on medical home improvement, standardized developmental screening, family and youth involvement, and health care transition. Federal funding for the project ended in May 2012; funding for the CoC and related projects is being continued through the Office for Genetics and People with Special Health Care Needs.

Click here to see a report summarizing the work of the CoC and its related projects between 2008 and 2012.

For more information, send us a request on our Contact Us page, or call (410)768-9100

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