Maryland Consortium for Children with Special Health Care Needs
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The Maryland Community of Care Consortium for Children with Special Health Care Needs (COC) is dedicated to improving systems of care for children and their families in the state.
The COC is a working group of diverse stakeholders, including families, providers, advocates, consumers, administrators, and professionals from the public and private service systems.
Funded by a grant from the federal Maternal and Child Health Bureau, the COC offers a forum for information exchange, problem solving, consensus building, and collaborative action to address gaps and barriers in services for children with special health care needs (CSHCN) and their families.
Using the national agenda for CSHCN and core outcomes as a starting point, the COC works to create systems of care that promote optimal health, functioning, and quality of life for Maryland CSHCN and their families.
The COC is a working group of diverse stakeholders, including families, providers, advocates, consumers, administrators, and professionals from the public and private service systems.
Funded by a grant from the federal Maternal and Child Health Bureau, the COC offers a forum for information exchange, problem solving, consensus building, and collaborative action to address gaps and barriers in services for children with special health care needs (CSHCN) and their families.
Using the national agenda for CSHCN and core outcomes as a starting point, the COC works to create systems of care that promote optimal health, functioning, and quality of life for Maryland CSHCN and their families.
Why the Consortium?
- More than 244,000 children in Maryland have special health care needs.
- Almost 1 in 4 Maryland households with children report having a child with special health care needs, greater than the national average.
- Over 1/3 of Maryland families of CSHCN do not have insurance that is adequate to pay for the services they need.
- Only about 55% of families of CSHCN report that they are partners in decision-making and satisfied with care; Maryland ranks 42nd among the states in successfully achieving this goal.
Data from 2005-06 National Survey of CSHCN
